The Research Participant Registry (RPR) at Washington University School of Medicine gives individuals the opportunity to participate in clinical studies and play a vital role in improving health care. At Washington University, more than 1000 clinical studies begin every year to evaluate new experimental therapies or devices. For every study, also called a trial, researchers need individuals to serve as participants. The RPR helps researchers find people who are interested and who meet study qualifications.
People who are healthy and those who have medical conditions are needed, from every ethnic and age group. We can also connect you with studies at other institutions who partner with Washington University in clinical research. For a more complete list, click here for Affiliated Institutions Institute of Clinical and Translational Sciences (ICTS) or click to see the Research Participant Registry.
Click here to see our video of sharing best practices and perspectives related to recruiting, enrolling, and following up with research participants. With the implementation of EPIC, study teams have wide access to be able to review medical records and call potential participants. While increasing the potential bank of participants is good for the overall research enterprise, there are not currently established “rules of engagement” for study teams. This short video showcases a variety of research participants and research coordinators. We asked them to speak to what made it a good experience; we also asked them about what could have turned them away from participating in any further research at the University. Members of study teams will speak to “best practices” they implemented in working with diverse populations and/or in training new study team members about communication. Parts of the video touch on proper phone etiquette, response and timeliness, best practices in obtaining informed consent and in screening and enrolling diverse populations (e.g., older adults, language differences, gender, socioeconomic status, parental consent for child participant, etc.).